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Monday, September 10, 2012

We are wearing a new accessory!

The day is here!  I woke Reagan up Wednesday morning singing good morning to her as usual but got all excited and told her that it was a BIG day.  I was sad thinking about the afternoon and R getting fitted for her new accessory that will make an appearance in her life for the next 3 to 5 months.  We got to the Cranial Center and immediately went into the small room where our Cranial Remolding Specialist handed us the smallest pink helmet I had ever seen.  She began to go over some things with us about her wearing schedule, cleaning and do/dont's.  She had us hold Reagan while she put the helmet on her for the very first time and then she had Zach and myself each do it for practice.  It was not hard at all.  once the helmet was on, it did not even phase her.  She did not even realize there was anything on her head.  We spent about an hour going over more things while our specialist did adjustments to the helmet so we had a perfect ft before we were on our way with new StarBand.  For the next 4 days we will gradually work up to wearing the helmet 23 hours a day.


Our Sweet Baby Girl in her StarBand


Helmet Fitting


Wednesday: 1 hour on, 1 hour off, do not wear at nap or at bedtime
Thursday: 2 hours on, 1 hour off, do not wear at nap or bedtime
Friday: 4 hours on, 1 hour off, start wearing at nap and bedtime
Saturday: 8 hours on 1 hour off  
Sunday: 23 hours!

Reagan wore it home from the appointment, which is only about 25 miles from our house but being that it was 5pm - rush hour, it took about an hour to get home.  She rode with Zach and about 10 minutes into the drive he calls me and says it must not be bothering her because our little angel is sound asleep!  This made me happy knowing that it is not hurting her to wear it!  We decided it would be best to keep her at home the next 2 days to monitor her closely (look for redness) to make sure she did not break out or it was too tight and also because with the schedule above, we really did not want daycare to have to mess with it.  Zach stayed home with her on Thursday and I stayed with her on Friday.  She did perfectly fine...piece of cake!  I even had some time on Friday to jazz up her helmet a bit.





Mommy added a butterfly while I slept!



Friday, Saturday & Sunday nights were great.  She slept her normal 10 to 12 hours without a peep!  The only thing that bothered me was a red spot on her forehead.  We are guessing it is from her sleeping on her tummy with her forehead pressed against the bed all night.  We go in on Friday for our first check up so we will address it then.

Now for it to start working so we can see her beautiful little head again.



Our little Aggie Cheerleaders cheered hard but we still didn't pull off a win against Florida!



On a side note...they were definitely telling the truth about it smelling like a dirty foot after wearing for a few hours.  The rubbing alcohol is a life saver and gets rid of the smell instantaneously. 
Let's just hope it continues to work. 

More updates soon....

XOXO, Julie

Tuesday, September 4, 2012

One More Day!

Tomorrow is the big day!  We get our STARband around 4pm.  As the day gets closer, I am starting to have fears of how our sweet little girl will handle having to wear this new accessory.  When I went to wake her up this morning, all I could think was just a few more mornings of head freedom.



One of the before pictures we took at home at 4 months.


I saw this on a blog I recently read related to plagiocephaly and one mom's journey and thought I would try it out.  Zach did this in photoshop, of course hers will be pink but isn't she precious?!

I will keep you all posted after our appointment tomorrow. 
Until then, I will continue to snuggle my baby girl.